Twelve years ago, I had never heard of the word, “Celiac.” It was only when my daughter had a series of symptoms that were affecting her health that I began researching the possible causes.
When I plugged in stomach pain, bloating, chronic constipation, sleep issues, and delayed growth into my google search engine, Celiac disease was one of the health conditions that popped up.
This has long been a topic of interest to me. Why? Because my mother lived with Alzheimer’s disease for 14 years, and my daughter was born with Celiac disease. I experienced the devastation of both these conditions, was the link between them, in fact. So, if there is anything positive I can add to the conversation about healing and supporting those with Celiac and Alzheimer’s, I would do it in a heartbeat. Read the rest of this entry »
Why is caregiving the loneliest journey? It occurred to me after posting the umpteenth photo from my trip to Florida why I feel the need to share my joy over and over again. I forget that some of my current friends didn’t know me when my mother had Alzheimer’s. So, I’ll share a little backstory about my caregiving journey.
I was in my early 30s when Mom first showed signs of the disease. It felt like my legs were cut out from under me. I had no clue how to handle a mother who was slowly spiraling into confusion. Add to that the fact that I had a series of miscarriages at the same time. These things made me question everything in my life.
After packing and saying our goodbyes to Jean and Vicki, Gilda and I drove south towards Alligator Alley. I was excited to be driving across Florida and to get a view of the everglades. My father, a civil engineer for the Army, had worked throughout South Florida on various projects before I was born. The names of towns were familiar to me because I had grown up listening to him talk about them.
While I felt as if I were home and had hopes of catching a glimpse of an alligator, Gilda’s husband Stu had warned her not to get out of the car because he’d been warned there were large snakes in the area. Gilda wasn’t sure what to do when I pulled over and asked her to take a photo of me by the water. Read the rest of this entry »