World Alzheimer’s Day and the Gifts of September

This time of year has always been special to me. Typically in the Carolinas, on the first day of fall the summer heat begins to ease and we get a hint of the cooler weather that is to come.

World Alzheimer’s Day and my birthday happen to fall side by side, which somehow seems appropriate.

Tomorrow is my birthday. For the past 16 years, I’ve also had the joy of celebrating with Sydney. Motherhood for me arrived three days before my 41st birthday. My daughter couldn’t have been more welcome, especially as she was delivered in the midst of my own mother’s long descent into Alzheimer’s.

Me, Sydney and my mom.

The years before Sydney was born were tough and filled with loss. I had a series of miscarriages and every day my mother seemed to lose more of herself. There were times I forgot how to hope, which is one of the reasons I feel compelled to reach out to those who are traveling their own difficult path of caring for someone they love.

But grief passes…like the seasons.

I didn’t know that after close to a decade of infertility, I would be blessed with a beautiful daughter.

I didn’t know that six years after my mother passed away, my memoir would be released.

I didn’t know that last year, on my birthday, the eBook of Motherhood: Lost and Found would be distributed internationally by Divine Phoenix and Pegasus Books.

I didn’t know that my audiobook would come out on the day of the Kentucky Derby (this past May) where years ago Secretariat, the grandfather of my beloved horse Crimson, won the first leg of his Triple Crown.

Me with Crimson.

There was so much I didn’t know.

This September, I’m honored to be working with a group of passionate and generous women who have created AlzAuthors, a blogsite with over 100 resources for people living with Alzheimer’s and dementia.

Next week, as World Alzheimer’s Month comes to a close, AlzAuthors will be holding an eBook sale from September 27th – 30th to honor those who are living with this disease.

In memory of my sweet Mom, the Kindle version of Motherhood: Lost and Found will be available at its lowest price on Wednesday, Sept. 27th, and deeply discounted through Sept. 30th.

As a special package, if you buy the eBook, the audiobook is available for only $7.49, instead of $21.95, a discount of almost 70 percent.

Last, but not least, my publisher is offering a drawing for a free audiobook on Twitter. To enter, follow Laura Ponticello https://twitter.com/lauraslist and Ann Campanella https://twitter.com/authorAnnC on Twitter and follow Laura’s instructions.

I like to think of Motherhood: Lost and Found as my love letter to those who are dealing with grief. Without support, it’s a lonely road.

Please feel free to share this post with anyone who is in a season of caretaking. Sending out prayers of hope to all.

My mom, Sydney and me on my birthday 15 years ago.

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Finding Hope in the World of Alzheimer’s

After attending the Alzheimer’s Association Dementia Education Conference here in Charlotte, I am lit from within with a fire, a desire to make things better, to provide a sense of hope for the sea of people I saw whose faces reminded me of the Sargasso Sea that I rowed on for so many years while caring for my mother who had Alzheimer’s.

Don’t get me wrong. I didn’t start out inspired. In fact, a part of me wanted to curl up and go to sleep, not face a full day of being reminded what it looks and feels like her to care for someone with dementia.

I didn’t want to go back to that emotional place. It was hard and lonely. I didn’t want to think about other people who are facing this pain. I didn’t want to think about my mother, how I had become an orphan in a sense before my time.

It was easier to simply put a lid on all those emotions and hide them somewhere in my heart.

At the conference, I was one of four writers in the Authors’ Corner. I was there to sell my book, offer people the opportunity to win a free Kindle version of Motherhood: Lost and Found, hand out flyers about AlzAuthors (a group of 100 authors who have banded together to provide resources for caregivers in need) and share pieces of my story – how my mother showed signs of Alzheimer’s when I was in my early 30s at the same time I was trying to become a mother.

The Author’s Corner

On the drive to the conference I prayed that God would lift me out of the swamp of my past emotions and use me as a vessel. I had no idea how this would happen. And to be honest, if I had followed my own feelings, I might have stayed in bed.

After all, going to the conference reminded me of my younger self. Twenty years ago, I went to this same conference, looking for help, seeking those who would understand, picking up brochures about places where my mother might one day be cared for. The landscape of caregiving is so different now — much brighter, with so many more options and offerings.

But what I remembered most from that long-ago conference was the sense of heaviness I carried within me. My mother was not the woman I grew up believing she would be, and I had no way of knowing how to move forward in this dusky night we both seemed to be trapped in.

There was a heaviness inside as I cared for my mother.

I came away from that day so many years ago wishing that I had a book to share with the other attendees. I had already begun working on mine, but it was nowhere near finished as my mother’s story continued for at least another decade. But, even then I sensed that my story was what I could share with others. It was the thing that might bring help and hope to people who were suffering, even as I was stumbling on my own path.

This year I came to the conference not as an attendee but as an author with boxes of books as my gift. My memoir was skimmed from the 14 years of pain and loss and grief, distilled in such a way that hope and life and light rose to the surface. My faith evolved over that time period. The hardships filed away certain rough edges of my personality. My heart was changed in ways I am grateful for, even though the process was torturous at times.

The 2017 conference brought some special surprises. I ended up sharing a table with a lovely, warm-hearted author and former nurse, Mary Ann Drummond, who has written Meet Me Where I Am, a compassionate guide about caring for those with Alzheimer’s. Her tender approach was exactly what I would have wanted for my mother. I also met Barbara Ivey and Carol Howell, two other wonderful authors who are supporting others through their books.

It was so inspiring to talk with Brian and Mary Ann.

Midway through the conference, Mary Ann and I were joined by Brian Kursonis, one of the most inspiring people I’ve ever known. Brian is 56 (my age), has early-onset Alzheimer’s and has become an important spokesperson for those dealing with dementia. Intelligent, soft-spoken and self-effacing, Brian is stepping up to the challenge of reaching millions of people in need.

How could I not be encouraged and deeply moved by these amazing individuals?

I wanted to grasp the hands of all the attendees who walked by whose faces were filled with sorrow, squeeze their palms, look into their eyes and say there is more…. There is hope… This is but a moment in time. I see you, but more importantly God sees you and He sees your loved one. It is okay, even good to cry. Your deep sadness is a stamp of your love. You are not alone, even if it feels that way. Each of us here at this conference has a story, each of these stories must be held preciously. Let us share them with one another and watch our burdens grow lighter. If we link hands and spirits, we will find room for hope.

 


Finding Myself at the Beach

The beach has always been a place of deep nourishment for me. When my mother passed away, after living with Alzheimer’s for 14 years, I was physically, emotionally and spiritually depleted. I fled to the coast in search of the parts of myself I had lost.

Each morning, I got up early and walked the damp sand, studied the shore birds, listened to the roar of the waves and inhaled the salt breezes. My mother had always loved the ocean and images of her inspecting shells or pointing out dolphins gradually began to float back to me.

As I remembered and grieved for my mom – the woman I had lost, the mother whose physical form had departed this world – tears filled my eyes and slipped down my cheeks.

At the same time, descriptions and words filled my head. and I began jotting down lines of poetry that turned into poems. In this period of solitude, I gave voice to the myriad emotions that came to the surface.

Little by little, a lightness began to permeate my soul. It was as if my grief had been clogging the pathways to joy. And as I gave my feelings permission to take flight through words, a sense of the sacredness of life filled me. Gradually, I awakened to some of the day-to-day blessings I had been blind to over the years as I numbly cared for my mother.

I’m excited to share my journey from grief to joy in my new collection of poetry called The Beach Poems. It will be available through Main Street Rag Publishing Co. The list price is $12. But If you live in the U.S. and you order now, you will receive the pre-publication discount of $6.50 (plus shipping).

Click here for your pre-order discount. The collection will be mailed to you upon publication. Thank you for your support, and may your beach days be blessed!


The Heart of a Vet

Today we had the vet out for the horses’ annual shots. It was a routine visit, one that snuck up on me as I had scheduled it weeks ago. But what surprised me even more was the emotion that came over me after the visit.

The story actually begins back in the spring. That was when I heard the news that the large animal vet that we usually use was no longer practicing. I was sorry to hear this because he was someone we liked and respected, and (as a horse owner) it’s a big decision to find a new vet.

A few weeks later, I learned that Dr. Bob Gochanauer, a dear friend and wonderful vet,  had passed away unexpectedly. My heart ached for his family who used to have a farm just a few miles away from us. Dr. Bob had also been my primary vet for Crimson for 13 years.

Dr. Bob (photo credit: Mobile Large Animal Vet Service website)

Between the time that Crimson passed away and we purchased Foxie for Sydney, Dr. Bob and his family moved further out in the country, about 45 minutes away. He was still practicing, but because of the distance, I had decided to use a closer vet for the sake of convenience.

After our other vet left the practice, I took some time researching vets. I’d heard it said that we had a “shortage of vets” in the area.

I decided to call Dr. Mary, who is Bob’s daughter. Yes, their office was farther away, but something tugged at me.

Dr. Mary (photo credit: Mobile Large Animal Vet Service website)

She and her assistant pulled up to the farm today in their big truck. I hadn’t seen Dr. Mary since she was a kid, when I used to give her riding lessons. Her face held the same open kindness that I remembered. We embraced for a long moment, and I whispered in her ear that I was so sorry about her dad. She nodded and smiled, her eyes filling.

When she entered the barn, I was blown away by how much she reminded me of her dad. Her mannerisms around the horses were spot on. She stood like him; she asked questions; she wasn’t in a rush. He had been an old country vet with gut wisdom about animals and true kindness.

I had forgotten how deeply I felt connected with him when he worked with the horses. Shady tends to get nervous around new experiences, and Dr. Mary helped him through his rotation of shots calmly and beautifully. Then she went on to treat Foxie, who stood quietly in her stall.

Before Dr. Mary left, I gave her a copy of Motherhood: Lost and Found, and told her there was a chapter that included her dad. He had euthanized Little Bit, one of my school horses, and he did it in such a gentle and loving manner that it always chokes me up when I think of it.

I’d been wanting to give her a copy of my memoir for some time, but it was one of those things I hadn’t got around to. (She lived far away, I didn’t know her address, yada yada yada.) She held the book to her chest and her eyes filled with tears. We embraced again, and I cried with her.

Later, with the horses turned out to graze, after their non-eventful vet visit, I found myself still full of emotion, thinking of Dr. Mary – on the road treating horse after horse, today and every day, the way her father did. I am so grateful for the kind of compassion they bring to this world.

 


Introducing The Beach Poems

I’m so pleased to announce that my collection, The Beach Poems, will be published by Main Street Rag Publishing Co. I’ve been working on this group of poems for oh…about 10 years. (Not long compared to the time I spent on my memoir.) 🙂

The beach has always been a place of deep beauty and healing for me. My mother passed away in 2007 after 14 years of living with Alzheimer’s. As you can imagine, it took some time for the layers of loss to lift. This collection of poems is special to me because it shares the story of my journey from grief back to joy.

Here’s the exciting part. My publisher Scott Douglass is offering a pre-publication discount. The book will be released in a couple of months. But if you order now, you can get it for $6.50 (plus shipping) instead of the cover price of $12. Not a bad deal.

Here’s a link directly to my author’s page:

https://mainstreetragbookstore.com/?product=the-beach-poems

The MSR Online Bookstore: http://mainstreetragbookstore.com/

*A note from the publisher: Those of you who don’t like buying online, Main Street Rag will take checks, but the price is a flat rate of $12.50/book regardless of quantity which includes shipping and sales tax. Please remember, though. This is for advance orders. It doesn’t mean the book will be shipped early, only that you are receiving a discount for ordering before it goes to press, but the price will only last for a limited time, so order now!

Thank you so much for all of your support! I send my deepest gratitude and blessings to those of you who have walked with me and been on your own journey through grief. May your beach days be blessed.

To read more about The Beach Poems, go to my website by clicking here: www.anncampanella.com


The Changing Moods of Lake George

I’ve been at the lake for almost a week, just enough time to slip into the rhythm of a lake dweller. Someone who has forgotten the minutiae that occupied my mind before I arrived, someone who eats meals on the deck and no longer cares about washing my hair, someone who takes note of the wind and checks the surface of the lake each time I’m outside. Someone who cools off before dinner with a swim.

Here at Lake George the weather shifts from cool and windy to warm and sunny to damp and rainy within a few hours. This year, we’ve been blessed with beautiful days where we’ve enjoyed being out on the boat, swimming to the float at the family beach, spending a morning on a dining porch or an afternoon on a dock chatting with cousins, watching the sun set over the mountains.

The first few days, we rushed to get everything in, still running on the energy of our regular lives. But today, my last day here, I want to slow down and absorb the messages this place holds.

On our first days, we took Sydney tubing with a cousin, went kayaking around the bay, swimming at the beach. We gathered with cousins for our annual family meeting and picnic. There was a flurry of activity and fun.

Midway through our time here, something slowed inside me. My daughter and I canoed to Joshua’s Rock. The wind was so strong, we hardly needed to paddle on our way out. We sat on the ledge that I’ve shared over the years with my mother, my siblings and cousins and looked out on the expanse of lake. Neither of us said much. My daughter picked wild blueberries from the bush beside her as I studied patterns of moss on the granite under my bare feet. On the way home, we had to dip our paddles deep to keep from floating backwards with the current.

Before sunset, the wind died down and we took our friend’s pontoon boat out. The water in the bay was like glass and the sky a tapestry of greys.

Today, I walked down the hill to the beach and felt the echo of my childhood footsteps, how I couldn’t stop my young legs from running, skipping over the stones that rose from the green grass like the brows of my uncles.

The sight of water behind the tall pines along the shore never fails to lift my heart. And on a day when the sky is china blue and sketched with white clouds, this place feels like a small piece of heaven.


Lake George: Where Time Shifts

I woke early to the raucous sounds of birds and the early morning light filtering through the pines and into the windows of the Owl’s Nest, my great great grandfather’s home. It’s always a bit disorienting to wake here, after the flurry of packing, a long day on the road and the rush of unpacking, checking the house, settling the dog and so on.

Suddenly, all is quiet … except for the birds. Actually, it’s more like time has stopped … or I’ve entered a place where time has new meaning … it loops back on itself, reveals spirals, reinterprets the life I thought I knew.

I am deeply attached to this place, and yet I don’t always like it. Maybe it’s the fact that the layers of memory are so deep. It’s never a simple vacation … a place where we can “get away from it all.” Rather, it’s a place where the old returns.

Sometimes that is a gift and a deeply comforting one. My mother is near to me here. I see her making beds, walking up and down the creaking stairs of this old house, sitting on the stone porch. And I feel her love of place and family. It is so ingrained in who I am.

But this place also holds memories of losses – the years when my mother’s mind was slipping away, her confusion, the hurts she held onto. Things I don’t want to see.

Yet, it also reminds me that these things are like the rings on a tree. Passing phases in the life of a family. Last night when I walked down to our dock, I took a photo of the waning sun and studied what used to be my grandparents’ boathouse.

I remembered making my way as a child through spider webs to climb into the old teak motorboat. For years, the boathouse was dilapidated, until a cousin recently did a major renovation on it. Now it has new life, yet its image still holds the past within it.

Perhaps some of what is difficult about being in this place is the jumble of old and new all mixed together, like the chaotic blend of birdsong this morning. A part of me is busy sorting, sorting through the amalgam … trying to understand the different songs and figure out where I fit.