Is it really July already? For some reason, I thought June would continue on for a while longer. It was jam packed with so many special events and days. As usual, I need to take a moment to slow down and process all that has happened. From a family trip to the beach to my 35th college reunion where I had the opportunity to gather with classmates and hear astronaut Tom Marshburn talk about space as I shared about the experience of writing my book to the week of the summer solstice when so many people affected by Alzheimer’s joined together for #TheLongestDay campaign.
During June, Motherhood: Lost and Found also reached #1 on Amazon’s Bestseller List. This happened during the week of the anniversary of my mother’s birthday and my father’s death. And just before spending the last two days of the month in a wonderful writing retreat, I got a glimpse of the cover of my new book of poetry, The Beach Poems. Is it any wonder that I feel overwhelmed with emotion and gratitude?
None of this could have happened without the support of my amazing community – my family and friends, my publishers – Laura Ponticello of Divine Phoenix and Scott Douglass of Main Street Rag, my writing friends, my Alzheimer’s connections, even my new friends on Instagram and Twitter.
It has been such a gift to make new connections and renew old ones. At my college reunion, I found myself talking with people I had hardly known at school and feeling so grateful for the opportunity to find common ground.
I’ve been wanting to write a “gratitude post” for some time now. When you have a book that reaches wider circles than you ever dreamed, it only happens because of outside support.
A year ago, when my publisher Laura said she wanted me to become active on social media, I groaned inwardly. Instagram was something for younger folks, and I had no idea what a Tweet was.
Little did I know I would fall in love with taking photos of our horses and posting them, and that I would find a community of others who loved horses and animals and books. When they heard I had a memoir about my mother and my beloved Crimson, a grandson of Secretariat, (to my surprise) they bought it! And not only that, they wrote reviews, shared my posts and told their friends.
A special thank you to @fabfortykindnesschallenge, @leslie.jenny, @walkingfortheloveof books, @monasheeandme, @bellasdogtrot, @shelley.b.new.zealand, @dmjohnston54, @missmayaslife @originalteddybutton and @skyes.mom. These are just a few of the wonderful folks who have supported me. I know I’m forgetting some of you, and I apologize for that. But I won’t forget your kindness.
If you have an Instagram account, check out these lovely people and their accounts.
In my next post, I’d like to give a shout out to some wonderful connections I’ve made in the Alzheimer’s world.
*And coming soon, a post about my new poetry collection….
p.s. If you enjoy horse photos, I’d love to have you join me on Instagram. My account name is @horses_2nd_time_around.
In last week’s post, I talked about how the process of marketing Motherhood: Lost and Found has added new layers to my story. Each time I prepare for a presentation, sit down to write a press release or have an interview about my memoir, I have the opportunity to look at my relationships anew.
I treasure this time spent in contemplation about my mother and the depth of her influence on my life. While Alzheimer’s shifted the course of our relationship in unexpected, painful and challenging ways, it also taught me to slow down, release expectations and open myself to the gifts within each moment.
My perspective has changed, of course, with my mother gone. It is much easier to see that while the care taking and the grieving seemed endless at the time, it was but for a season. I am reminded that all of us lead lives that are a series of seasons, seasons that in the conglomerate make up who we are, seasons that lead to our final act.
I have transitioned from a childless woman in her early 30s to a mother in her mid 50s who has laid her own parents to rest. Time has evaporated. The reason I continue to share the story about my mother’s Alzheimer’s and my own infertility is to provide a message for those who have suddenly become stranded on their own island of grief. My hope is to reach out a hand, to let my readers know they are not alone.
I hope you find meaning in this podcast. Thanks for reading and listening!
Click here to listen to the podcast.
To order a copy of Motherhood: Lost and Found, click here.
November 17th is the anniversary of my mother’s death. This year, with the recent release of my eBook, and “A Conversation about Alzheimer’s and Dementia” at Main Street Books scheduled for this same day, the date feels even more loaded than usual.
I find myself reliving my mother’s last days. Nine years ago, we had a drought similar to the one we are having now. I remember my husband and I walking the path at Jetton Park and seeing the stretches of red clay populated with dark tree trunks and boulders that were usually underwater.
As we traversed my mother’s last weeks and days, it felt like we were walking on the moon. Normal life had receded like a distant planet as caregiving took over my days. I felt like an alien in my own skin. This week, as my husband and I return to Jetton Park, we’re seeing the same strange landscapes that are usually covered by water.
Nine years ago I waited for the fall colors to blossom and fade. I kept thinking that the leaves would be gone by the time my mother died. But they hung on, flashing a kaleidoscope of gold and crimson, russet, ginger and auburn. I drove by one particular tree on my way to the nursing home, and each day it got brighter until the day of her death it was like a burning flame.
As the years have passed by, my mother’s voice seems to grow stronger. Not a nagging voice of a mother encouraging a child to do the right thing. But the loving essence of her, the joy she took in reading and writing, her delight in nature, her natural sense of nurturing, her keen desire to continue learning and her depth of connection to her family. All of this and more surrounds me as I move through my days.
I could not be more grateful that she was my mother. Perhaps I need to say this aloud, to write it over and over because I didn’t fully appreciate who she was when she was alive. The thought makes my eyes fill with tears. I wish I had done more for her. And yet, I know she understood and gave me grace. Even when I was a self-centered teenager. She never expected me to fulfill her. I pray that I can share the same kind of unconditional love with my daughter.
So I celebrate my mother this November. Who she was and how she seasoned my life so tenderly with her love.
The month of November has deep resonance for me. This year it is stronger than ever. Part of it is because it’s National Alzheimer’s Month and National Caregiver’s Month, two things I’m well acquainted with. And, the fact that my memoir, Motherhood: Lost and Found, has moved back onto center stage with the eBook being released and the audio version coming soon.
But there is more.
I don’t know how other people market their books. I am not and never will be a salesperson. So, instead of advertising in traditional ways, I find myself retelling my mother’s story – her descent into Alzheimer’s – along with my struggle with infertility, over and over again.
It took me 20 years to finish my memoir. That was not a typo. Twenty. Years. Of course, I didn’t spend every minute of that time writing. I set the book aside when my mother needed me. Many years into the writing process, when my daughter was born, I stepped away for large chunks of time. But I always came back. And I revised a LOT! Okay, I guess I’m a bit of a perfectionist. Still, 20 years is a long time to work on a story, especially when it’s a book about your own life. You’d think I might get bored with it.
That never happened.
Maybe it’s because relationships are endlessly fascinating to me. I didn’t have as many years as some do with their moms. My mother was 41 when she gave birth to me, so I had a lot of catching up to do on her life. And I was only 33 when she began showing signs of Alzheimer’s. That’s pretty young to begin losing your mom. Maybe working on the book was a way to feel close to her.
Even now, I treasure the hours when I am writing about her. I’ve produced press releases, magazine articles, guest blogs posts and more. I rarely send out a duplicate story. Each piece is an opportunity to relive those years with my mother, to understand her better, to reach deep into my being for the gifts she gave me.
And the life I’m currently living with my husband, daughter and animals on our farm serves to only amplify the relationship I had with my mother. My daughter and I have a similar age difference as my mother and I did. So, I find myself not only reliving my life with my mother as she slowly spiraled into Alzheimer’s. But I am also reliving my own teen years (and thinking of my mother’s response to me) as my daughter rides her horse, enters high school, gets her driving permit and stretches her wings.
At times, it’s as if I’m living in an echo chamber and the memories are reverberating like voices all around me.
* In honor of my horse Crimson, I’m giving away a copy of the Kindle version of Motherhood: Lost and Found. For a chance to win, leave a comment at the end of this post. Be sure to include your email address. A winner will be selected next week. Good luck!
* Two winners have been chosen. Thank you for your comments.
Motherhood: Lost and Found tells the story of my struggle to have a child at the same time I was losing my mother to Alzheimer’s. For those of you who don’t know me, the back drop of this story is my love of horses.
During this decade of loss, I was deeply involved in the horse world. Most mornings I could be found at the barn grooming or riding my horse Crimson. My afternoons were spent teaching dressage and hunter/jumper to a group of riding students who I adored.
Crimson was a very special horse. He happened to be a grandson of the great Secretariat. An Appendix Quarter Horse, I learned that Crimson had won one race before his career at the track ended. I purchased him as a green six-year-old when we lived in Houston, and trained him to jump. We transported him to North Carolina when Joel and I moved back home to be closer to my parents.
A chestnut gelding just shy of 16.2 hands, he looked a lot like Secretariat. And he had the heart of a champion. Crimson was the kindest horse I’ve ever known. When I was overwhelmed with the grief in my life, I went to him.
Some days when the sorrow was too much to bear, I would go down to the barn and watch him grazing with the other horses. Other days, I could do nothing more than lean against Crimson and rest my head against his neck. He would stand like a statue absorbing my emotions.
My mother’s illness lasted for over 10 years before she died, and for much of that time, Joel and I remained childless. Because my mother required constant care, I had to board Crimson at other farms for months at a time. It was heartbreaking to let him go. But I sensed that he understood. I was also fortunate to have wonderful horse friends who helped care for Crimson while I was away.
After my daughter was born, I was finally able to bring Crimson home. It was a gift to have him at the barn. His kind and gentle nature always lifted my heart. Each morning, I did chores – cleaning stalls and filling water buckets – while Sydney rode in a pack on my back. It was hard work taking care of a mother with Alzheimer’s, a young child and Crimson. There were long days when my mother was sick, Joel was out of town or my daughter had been teething throughout the night. But Crimson’s presence gave me strength and peace.
During those years, I didn’t have much time for riding. But occasionally I would hop on just to feel the rhythm of Crimson’s gaits, his rocking canter. I remember one day wanting to share this wonderful feeling with Sydney. She was delighted when Joel lifted her up on the horse in front of me. Crimson was a perfect gentlemen, as I knew he would be.
I’ll always be grateful for the time I spent with this wonderful horse. Crimson passed away in 2003, after a serious attack of intestinal colic. He was 19, the same age his grandfather Secretariat was when he died. We laid him to rest on the farm near the magnolia tree given to me by my friend Lyn in honor of my miscarriages.
To order a copy of Motherhood: Lost and Found, click here. I’m so thrilled that it has been No. 1 on Amazon’s Hot New Releases for Eldercare. For more information, please see my website: www.anncampanella.com.
It’s been seven weeks since Shady arrived on the farm. I’m happy to report that during the month after BarnStock, the gunshots and Foxie’s “walk-about,” the horses have gradually begun to get more comfortable with each other. Shady has suffered a few kicks and bites. Nothing too serious, just the occasional reminder from Foxie that she’s in charge.
More often than not, when I wander down to the barn or walk by the field, I see the horses grazing peacefully together.
Sometimes they keep their distance.
Other times they move closer together.
A couple of weeks ago, the girls had a lesson, and the horses were happy to be in the ring together. Halfway through the lesson, a rainbow appeared. I’m taking it as a good sign. 🙂
Back at the barn, Shady is learning when to keep his distance…
And when it’s okay to get close….
The next morning, as I walked down to the barn, I was greeted by this sight:
Somebody was ready for breakfast. I opened the big doors at the back of the barn and greeted Shady. I brought him into his stall to eat, and a moment later, Foxie appeared, ready for her breakfast. It was a lovely surprise as I had envisioned having to track down the horses by foot every morning, knowing that Foxie would just as soon stay out and eat grass rather than make the trek to the barn for the handful of grain she received during the summer months. Thank you, Shady!
While Shady was learning the new routine and Foxie was adapting to her stable mate, little did I know that there were still a few more challenges in store for us.
Intense heat was not unexpected for mid July, but the string of hot and humid days with heat indexes over 100 degrees were hard on the horses and people alike. After breakfast, I turned the horses out for an hour or two in a paddock where there were trees. But by mid morning, it was too hot for Shady to be outside because he would wander out of the shade and into the sunlight where the temperature was several degrees warmer. Even grazing in the shade, at times, his coat would be wet with sweat. So I brought the horses in around 10 or 11 a.m. each morning, and they stood in front of their fans, licking their salt blocks.
By 4 p.m., each afternoon, the barn heated up, and I felt it was more comfortable for the horses to be outside in the afternoon shade. The stalls had to be cleaned fairly quickly to avoid the fly population multiplying. I could feel sweat running down my face as I scooped up piles of manure in the near-100-degree heat.
Because the smaller shady paddocks were getting overeaten, it was important to move the horses into the big pasture for the night. But the big pasture was in full sun most of the day, until about 7 p.m. At that time, I turned the horses out to the bigger space.
Unfortunately, Foxie and Shady’s second night together was also the evening of Barnstock, an outdoor rock concert that was just down the road. Over the past several years, during the evening of the concert, it’s been hard to sleep at night as the music played on and on, sometimes through the wee hours of the morning. This year, the equipment must have been upgraded because the music seemed even louder. The horses were anxious as the music played on and on. Just before dark, my husband and I took a walk down the road to see what was going on with the concert. I also wanted to check on the horses. They were standing on the lower part of the hill where the music was slightly muffled. I imagined their sensitive ears were still ringing the next morning.
I was sure we had survived the worst of things when I walked down the hill to the barn the next afternoon. Suddenly, I heard gunshots. They were so loud, I wondered if should duck or call out in case someone was shooting near our woods. It felt like a bullet might come whizzing towards me at any second. Sunny, who usually likes to run ahead, pressed close to my side. The horses were anxiously pacing the fence line. I peered through the trees on the edge of our property and saw my neighbors in one of their fields. They own a large dairy farm, and, occasionally, I’d heard shooting coming from that direction. Perhaps a fox or a coyote was bothering their calves or maybe they were just having target practice. I had no idea what they were doing, but they were awfully close to us, it involved guns and I wanted it to stop. I brought the horses into their stalls, hoping to calm them. Shady couldn’t stop circling and Foxie, who normally carries her head low, was alert and anxious.
It wasn’t quite 7 p.m. and the big pasture was still mostly sunny and very hot, but I thought the horses might settle down if they were further away from the shooting. I led the horses to the back of the barn. Once there, they galloped up the lane and into the ring (which is in the middle of the big pasture). During the sunny hours, the ring is the hottest place on the farm, so I didn’t want to leave them there. The horses were too anxious to turn around and go back out the gate they had entered because that would mean they’d have to move closer to the gunshots. So I walked up to the ring to slide open the metal bars that were on the far side away from the noise. After I slid the top rail off, Shady trotted over and jumped the lower rail. Foxie waited until the second rail was open before joining him.
There was a patch of shade by the trees that was slowly expanding, and I hoped the horses might walk into it. By now, the horses were both covered in sweat, after running up the hill and then standing in the hot ring. The combination of heat and anxiety worried me. I didn’t want either of them getting dehydrated or suffering from heat exhaustion. I walked back to barn and grabbed a halter and lead rope. Back in the big pasture, both horses were still standing in the sun, heads high, as they looked towards where the gunshots were coming from.
I walked over to Foxie, put the halter on her and led her into the shade. Shady followed close behind. I stood with the horses enjoying the slightly cooler air. But as soon as I slipped the halter off of Foxie, she cantered right back into the sun, with Shady right behind her.
I grumbled aloud. The heat and their reactions were making me irritable. I wasn’t that surprised. They wanted to be as far from the gunshots as possible. And fear overrode discomfort. But I couldn’t leave them in the sun, their coats slick with sweat. I walked up to Foxie again and slipped the halter over her head. My plan was to lead her (with Shady following) down to the shady paddock. They would be a little closer to the gunshots, but at least they wouldn’t overheat.
I led Foxie down to the cooler paddock, and, as I suspected he would, Shady followed. I opened the gate and walked Foxie several feet in in order to give Shady room to enter behind her. Without thinking, I slipped the halter off of Foxie, preparing to walk over and close the gate. Typically, Foxie would stand still, drop her head and begin grazing. But at that moment, another round of loud gunshots went off. As soon as Foxie felt the halter clear her head, she whirled around, galloped past me, slipped out the gate and took off up the hill. Shady, of course, was right behind her. I stood there shaking my head, exasperated.
About this time, I heard my husband’s car coming down our hill. I hurried to the front of the barn to meet him, waving my arms to slow him down. He opened his window with a questioning look. I yelled: “Do you hear the gunshots? The horses are going crazy! I’m afraid they’re going to overheat! Can you call the neighbors?”
A few minutes later, my cell phone rang. Joel told me the neighbors were shooting skeet. He told them the horses were acting up, and they kindly offered to move to another field. I’m thankful that Joel made the call, as I know he was extremely cordial, acknowledging that they were on their own property and asking very politely for a favor. As I’ve said in the past, we have wonderful neighbors. But at the end of this long week, seeing the horses so upset and dangerously hot, I wouldn’t have been so polite.
A few moments later, thankfully, the gunshots subsided. The horses were still in the direct sun, so I didn’t feel comfortable leaving them there. This time I walked up our gravel driveway, hoping to call to them and encourage them into the shade, now that the noise had ended. But, of course, the horses weren’t ready to settle down and graze peacefully. They trotted around with their heads and tails held high. I had been reading lately about heat exhaustion in horses. The article warned of flaring nostrils as a first sign. I could see the pink of both horses’ nostrils.
I still had Foxie’s halter over my shoulder, so I went to the big gates along the driveway. I would slip through, halter Foxie and lead both horses to their stalls. That way I could give them baths and let them stand in front of their fans for a bit, cooling their body temperatures before turning them out again. A wasp was circling the gate, but I figured I could easily slip by it. I made it inside when the chain that kept the double gates closed fell to the ground. I leaned down to pick it up, then wrapped it around the metal bars. Unfortunately, I had to do this blindly, and being overheated and stressed myself, I was rushing. I felt two pin pricks on my arm. Ugh! The wasp! Maybe it wouldn’t be too bad. My adrenaline must have kept the pain down for a minute or two. Suddenly, I felt the intense sting that always comes with a wasp. It was accompanied by another wave of irritation … I knew better. I could have prevented this.
Foxie and Shady walked somewhat placidly down to the barn. I bathed them both and let them cool down in front of their fans before turning them out in the smaller paddock. In the wash rack, I ran cool water over the swelling on my arm. What could possible happen next?
Well, the next afternoon, Foxie showed signs of being in heat. I first noticed her pacing the fence line, then, after turning her out in the big pasture, she stayed by the barn, circling the small area at a trot. Shady, who had cantered up the lane to the big pasture, realized Foxie wasn’t behind him and slowly meandered back to the mare. As soon as Shady arrived, Foxie trotted back out to the big pasture. A few minutes later, she came trotting back to the barn and began circling again. She did this over and over…and Shady followed her back and forth. Foxie hadn’t turned into Super Mare, the way April did, but this was not Foxie’s normal behavior. She was in a stronger heat than I’ve ever seen with her.
I was beginning to wonder if the universe was conspiring against me and the horses. From Foxie escaping to the loud concert and gunshots to the unbearable heat, wasp stings and now Foxie’s strong heat. Shady was new and his presence at the barn had shaken things up. I was prepared for some activity. But usually horses transition to new situations within a few days. This wasn’t Shady’s fault. He was as much a victim as I was.
A part of me was frustrated and tired, but another part of me noted each unusual event with curiosity and interest. Horses and their personalities have always fascinated me, and watching how they reacted to new situations was like unraveling a mystery. I appreciated the opportunity to understand these wonderful animals at a deeper level. But I was tired…and ready for a rest.